On the last day of October, rather than celebrate Halloween, I find it more befitting to my blog’s theme to celebrate the end of October as the drawing-to-a-close of Health Literacy Month. Despite my extended career as a registered nurse and health care professional, with a solemnly sworn duty and oath to help disseminate the best information available regarding health and wellness to both my patients and to the general public, I was struck by the fact that I did not learn about this annual, month-long celebration until I began to search for credible websites which would shed further insight into the subject of health literacy. Incidentally, health literacy is a subject which I have found to be one of the integral pieces to the much larger puzzle of how to ultimately achieve universal health care access to all individuals. During this search, I encountered a website called The Blah, Blah, Blah blog. Though this website is designed primarily for librarians and information science professionals, it certainly contains a wealth of resourceful information for any concerned global citizen who wants to find ways to expand and improve health literacy among health care consumers.
But, in the true spirit of Halloween (and in compliance with the assignment outlined by my professor), I will also divulge my five biggest fears in regards to the issue of health literacy–or the lack thereof–which is now recognized as one of the biggest hurdles that must be overcome before we can adequately tackle the much larger issue of universal health care. Through the identification and filtering of Internet websites, I will also discuss possible solutions that are proposed on the most credible websites that I discovered through my web research. As a result, we can see that this topic certainly qualifies as an issue of global technological/communication concern, in view of our continued evolution into a global society that depends on an infinitely connected digital network which allows us to accomplish even our most basic and fundamental daily goals. My own fears will resonate with those who use digital technology as a staple in their daily diets of continuous media consumption. My fear is that as we become a more globally connected society, we will discover that the disparities and inequalities which were previously defined in terms of local, state, or national concerns will begin to permeate their way into the innermost realms of the globally-connected digital network as well. Simply put, our problems will grow even bigger. As our world becomes larger, so do our societal problems that will need to be further addressed for an even larger number and more diverse group of people.
Below, I have listed my five biggest fears in regards to the pervasive problem of health illiteracy, especially as it pertains to an ever-increasing, ever-evolving, and ever-confusing digital information-based society, as well as reliable websites which address each fear and also offer proposals for potential solutions:
Fear #1: In a larger and faster digital information society, the harmful health effects that result from the “pre-existing condition” known as health illiteracy will grow even faster when combined with the effects of Internet illiteracy. The unforeseen measurements of the potentially harmful effects of health illiteracy are outlined on a webpage maintained by the National Network of Libraries of Medicine, which discusses the problem as it pertains to our current national health care goals, as well as the possible implications for the future of health care delivery throughout the nation and rest of the world.
Fear #2: In a larger and faster digital information society, patients and health care consumers will become even more vulnerable to unreliable health information found on the Internet, due to both their lack of health literacy and their lack of adequate knowledge and research tools with which to judge whether or not a health website can be considered useful or trustworthy. There are websites, such as that provided by the U.S. Food and Drug Administration, which provide sets of guidelines which health care consumers can use to judge whether health websites can be considered as reliable sources of health information. Sites such as these become increasingly important as health care consumers must learn crucial skills to navigate the web, and learn how to change an endless maze of data (which through a quick Google search may comprise millions of unvetted sites) into a targeted map of reliable resources for accurate health care information.
Fear #3: In a larger and faster digital information society, as even more technological advancements are realized in the health care sector, so will the level of health care knowledge expected from patients. Only the most “savvy” Internet users will have the opportunity to become the most “savvy” health care consumers. An article entitled “Decoding Your Health” , available on the NY Times Health website, offers information on how nearly all health care consumers, through the use of the Internet, can increase their own knowledge as it pertains to their own health. Health care consumers should not require advanced medical knowledge or training in order to make well-informed health care decisions that are based on facts rather than opinions.
Fear #4: In a larger and faster digital information society, decreasing numbers of health care professionals will search for unique ways to reach patients who do not possess either adequate health literacy, or the technological access or skill to learn as much as they need to before they can become well-informed participants in their own health care. As an educated health care professional with a vast mental repository of both clinical and research experience, I can appreciate the fact that as health care professionals become more sophisticated in their own knowledge and use of the Internet as a tool to both gather and disseminate health information, they may consequently lose sight of the fact that not all health care consumers are “created equal.” Health care professionals such as physicians, nurses, rehabilitation specialists, and health care policy experts often communicate in a language that is only understood by those trained to decipher the unique medical jargon. Though this language may be viewed as acceptable when communicating amongst their own peers and colleagues, health care professionals should simultaneously increase their own awareness of the potentially dangerous results that occur due to providers’ unclear communication of health information to their patients. Health care professionals should take the initiative in this area by educating themselves on better ways to reach clients who may not understand the often complex messages that they receive from their health care providers. An important website that I discovered that addresses this issue is the site for Health Literacy Studies at the Harvard School of Public Health.
Fear #5: In a larger and faster digital information society that is increasingly global and increasingly dependent on Internet technology which connects us to more remote corners of the world, individuals who lack sufficient literacy skills will become even more vulnerable to the Internet connectivity gap known as the “digital divide.” As more members of the global population learn to rely on the Internet as a source of the most current and relevant information on nearly all topics, even more of these users will look to the Internet as the premier source of the most current and reliable health information as well. Those health care consumers without any, or with very limited access to the Internet may not be privy to the variety of helpful health resources that are widely available on the web. These health care consumers may suffer more deleterious health effects as a result of more advanced progression of conditions or symptoms which may have been prevented or treated much earlier if the person would have had access to accurate information that is widely accessible on the web–such as warning signs, tips on monitoring, or self-care methods. One website that I found which addresses this topic can be found at Viswanath Lab, affiliated with the Health Communications concentration/division of the Harvard School of Public Health. This article discusses the digital divide, particularly as it pertains to health literacy and health communications. The complete website also discusses the lab’s own research efforts to study ways to increase Internet literacy among vulnerable populations, and ways to apply this research towards the development of health websites that will be tailored to the unique needs of these health care consumers.
As election day draws nearer, so do our fears and anxieties about what the future holds for our nation and our increasingly connected (albeit through technology) world. The above websites and web resources show us that through the expansion of available and accessible information via the Internet, the possible solutions to the problem of health illiteracy are endless:
1) Increasing the public’s awareness of the grave dangers that are posed by health illiteracy among patients and health care consumers;
2) Teaching patients and health care consumers of ways to protect themselves from false health care claims that are spread via the Internet, and ways to distinguish credible sites from those that are unreliable;
3) Offering more simple explanations, via the Internet, of how to interpret the confusing and often conflicting medical information received from healthcare providers;
4) Teaching and emphasizing to health care professionals the importance of clearly articulating and delivering health information to patients, as well as offering resources (via the Internet) to help health care providers meet the needs of clients who do not possess adequate health literacy skills;
5) Working to find better ways to bridge the digital divide, so that the Internet does not serve as an additional barrier to the elimination of health disparities, but instead contributes to the ultimate improvement of health care outcomes to global populations.
Through broader access to, and the more widespread dissemination of the vast amount of health information that is available on the Internet, each of us has the potential to discover better solutions to a myriad of complex health problems. This conclusion is based on the idea that the power to change society does not solely depend on our government institutions, but can be realized by global citizens who discard their personal fears through the realization that reformative action begins with one person–who works toward the solitary goal of making a positive difference in the life of just one person–even if that person is one’s own self.
Happy Halloween everyone!